Lilly Grossman is a disability policy advocate, systems strategist, and researcher focused on how public systems shape access, independence, and opportunity for Americans with disabilities. She is the Founder and CEO of Beyond The Box Advocacy, a nonpartisan disability policy and systems organization examining how disability systems function in practice.
Her work centers on a core structural problem: disability support services do not follow people across geography. Through her research and writing, she has developed the Disability Support Service Portability Framework to examine how place-based eligibility restricts movement, employment, and stability. She introduced the concept of "geographic lock-in" to describe how public systems constrain where people with disabilities can live and work.
She further developed the Enforced Barriers Umbrella, a framework that identifies recurring structural patterns across disability systems, including enforced dependency, enforced immobility, enforced insecurity, and enforced invisibility. This framework is used to analyze how policy design limits autonomy and shapes long-term outcomes.
Across her work, she analyzes how fragmentation across programs, eligibility constraints, and administrative design shape real world outcomes. Her research at the UCLA Center for Health Policy Research examines population level mobility patterns using national survey data and evaluates how Medicaid and home and community-based services influence decision making, access to support, and geographic mobility.
She translates lived system navigation into clear policy analysis, shaping national conversations on how disability systems can better support independence, mobility, and economic participation.
